2016, january 2017

Holding On by Jamie Grace

"Holding On" [VERSE 1:] All the signs of life They’re all around me with every heartbeat I feel so alive, I am joy and sadness, Peace and madness If only I can fight just a little longer I know It’s gonna make me stronger [CHORUS:] I just keep holding on to what I believe Oh,… Continue reading Holding On by Jamie Grace

2016, january 2017

NICU Fundraiser -Baby Soothers

We have been talking to the amazing NICU staff at Desert Regional Medical Center to determine their needs and wishes for the little miracles currently in the NICU. We learned that the NICU is in dire need of additional support to comfort all the babies they care for. We are starting our first fundraiser of… Continue reading NICU Fundraiser -Baby Soothers

2016, january 2017

Release and Let Be

Matthew goes in for his Second Transplant Evaluation tomorrow. I learned today that his Nephrologist actually put in the request for him to be seen again. She said he has met his goal that they wanted and thinks that he is a good size to go active on the transplant list. Matthew was first seen… Continue reading Release and Let Be


Monday. January 2nd 2017

Oh this boy... dialysis was poopy today. His blood pressure started off at 153/103 and then got down to 47/32. So he was fussy almost the entire 3 hours. Inconsolable. Days like today i wish mommy can just pick him up and walk out of this place. I picture myself carrying him in a hurry… Continue reading Monday. January 2nd 2017