2017

Emotional Detachment

I am going to be brutally honest in this post because I think it's time. I can't seem to comprehend the reality of everything going on lately. I have been in Mama Bear Mode for so long, I have detached myself from feeling true emotion. From day one I have had to fight for Matthew… Continue reading Emotional Detachment

2017, March 2017

Twelve Days, 12 hours.

Twelve days, 12 hours.... this is the text I received today from a very special friend. Twelve days, 12 hours... and I will know if this special friend of mine will be the perfect match for Matthew. Yes, that's right! We may have a kidney donor for my two year old son!! It was about… Continue reading Twelve Days, 12 hours.

2017, March 2017

Have I done it all? 

I can't help but think this *ALL* THE* TIME!!!  ALL THE TIME.  Have I done enough?!?! It was three years ago on March 20th that we first learned about Matthew. That night I came home and Googled the heck out of every alien word I heard that morning. And I searched statistics. I searched survival… Continue reading Have I done it all? 

2017, March 2017

Sitting quietly

I am sitting here feeding my son through his G-Tube. When I feed him, it is the only quiet time that I am. I try to put something interesting on television so I can at least watch something while I feed him. Sometimes I am lucky and the twins are falling asleep or pre-occupied with… Continue reading Sitting quietly

2016

The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs

When I was a child, my goals were to be in the FBI, a lawyer, a famous writer, or a top executive of an organization. Never one time in my life did I tell anyone that I just wanted to be a mom or a… Source: The 5 Reasons it's Difficult to be Employed and… Continue reading The 5 Reasons it’s Difficult to be Employed and Raise a Child with Special Needs