2016

The Week Before …

The week before transplant. The last 7 days have been some of the most intense and crazy day of this journey. I think over the last three years I have learned to manage and cope and deal with the stress of having a sick baby. I am emotionally detached. I hide my fear and stress… Continue reading The Week Before …

2016

I keep telling myself…

I keep telling myself that we are going to make it. That everything will be okay. I keep giving myself pep talks that this is just one thing. That this is just a "bump in the road". I keep telling myself that this isn't the life that I am supposed to be living. Not like… Continue reading I keep telling myself…