2019

Get to the Light

There is light at the end of the tunnel. You can see it. It’s there. It’s just... the tunnel sucks!! This is the path less chosen. In fact, I don’t think anyone chooses to go through this darkness. But there are the chosen few. God knew what HE was doing when He made you. When… Continue reading Get to the Light

2017, april 2016

The Decision to Fight

April 2014... we made the decision to fight! We weren't going to listen to doctors or social workers or even family members and friends that said maybe we should just let "nature take its course"...We were guided into the direction of termination because IF our son even survives this pregnancy, he will be born with many… Continue reading The Decision to Fight

2016

Monday. January 2nd 2017

Oh this boy... dialysis was poopy today. His blood pressure started off at 153/103 and then got down to 47/32. So he was fussy almost the entire 3 hours. Inconsolable. Days like today i wish mommy can just pick him up and walk out of this place. I picture myself carrying him in a hurry… Continue reading Monday. January 2nd 2017

2016, December 2016

26 Pounds 

Before Matthew was born, we were told that the magic number we need to pray for is 22. He needs to get to the minimum weight of 22 pounds to be eligible for a kidney transplant.It was highly unlikely that he would survive anything from pregnancy to NICU to after NICU... but we still had… Continue reading 26 Pounds 

2016, September 2016

Mama Can’t Help Him.

As Matthew's mama... I have taken over as his full time caretaker. Yes, I am a mom, and yes that is my job anyhow... but kids like Matthew normally have a nurse to help with everything that entails to take care of a kid like Matthew. We had some bad experiences with our nurses and… Continue reading Mama Can’t Help Him.