2019

Get to the Light

There is light at the end of the tunnel. You can see it. It’s there. It’s just... the tunnel sucks!! This is the path less chosen. In fact, I don’t think anyone chooses to go through this darkness. But there are the chosen few. God knew what HE was doing when He made you. When… Continue reading Get to the Light

2018

Life will always be hard

I have read so many articles and Instagram posts and facebook posts about special needs moms and how they miss out on everything because of the "life they live". I have read posts from moms in similar positions and circumstances as me in private facebook groups and have read over comments giving advice about what… Continue reading Life will always be hard

2017

The Fog of Life

I have missed a few weeks of writing. I have been purposely avoiding writing because I felt I needed to actually LIVE IN THESE MOMENTS. I knew I could always go back and update, which I will. I promise. But I wanted to really just FEEL. For once..  FEEL whatever it was that I was… Continue reading The Fog of Life

2016

The Week Before …

The week before transplant. The last 7 days have been some of the most intense and crazy day of this journey. I think over the last three years I have learned to manage and cope and deal with the stress of having a sick baby. I am emotionally detached. I hide my fear and stress… Continue reading The Week Before …