2018, blessed

#Momlife

I wanted to share a really REAL part of myself today. I think because I'm feeling some kind of way that I just need to vent and let it out. #Momlife... it's real thing. It's a real thing to literally lay in bed wide awake all night completely exhausted and just not be able to… Continue reading #Momlife

2016

The Week Before …

The week before transplant. The last 7 days have been some of the most intense and crazy day of this journey. I think over the last three years I have learned to manage and cope and deal with the stress of having a sick baby. I am emotionally detached. I hide my fear and stress… Continue reading The Week Before …

2016

I keep telling myself…

I keep telling myself that we are going to make it. That everything will be okay. I keep giving myself pep talks that this is just one thing. That this is just a "bump in the road". I keep telling myself that this isn't the life that I am supposed to be living. Not like… Continue reading I keep telling myself…

2016, JUNE 2016

Quality of Our Life Now

*Isaiah 40:31 -But those who wait on the Lord shall renew their strength; They shall mount up with wings like eagles, They shall run and not be weary, They shall walk and not faint. Quality of Life. This has been a hot topic in Matthew's life since before he was even born. On days when… Continue reading Quality of Our Life Now

2016, JUNE 2016

VCUG

Hey everyone. Yesterday Matthew was scheduled to have a VCUG. (don't ask me it stands for -Vesico-something-something-Gram) Anywho... what it is, is they put a catheter through his urethra and shoot up some liquid and dye, and they fill up his bladder and take pictures. They also test the pressure of how much urine he… Continue reading VCUG