2018

PEACE

A year ago I wrote a post about Matthew's dialysis catheter. The anchor to the catheter detached itself and it NOTHING was holding his catheter in. Nothing but tape. TAPE!! TAPE was all that was holding in a catheter that was inside the arterial vein leading to my sons heard. It was a tough very… Continue reading PEACE

2018

Rejection

February 16, 2017 This was the first day we heard of the possibility and the reality of organ rejection. Matthew went in for his labs Friday and they came back very off. So off, that doctors have ordered a different medication, ultrasound and more labs in 4 days. When the doctor sat me down for… Continue reading Rejection

2016

The Week Before …

The week before transplant. The last 7 days have been some of the most intense and crazy day of this journey. I think over the last three years I have learned to manage and cope and deal with the stress of having a sick baby. I am emotionally detached. I hide my fear and stress… Continue reading The Week Before …

2016

I keep telling myself…

I keep telling myself that we are going to make it. That everything will be okay. I keep giving myself pep talks that this is just one thing. That this is just a "bump in the road". I keep telling myself that this isn't the life that I am supposed to be living. Not like… Continue reading I keep telling myself…

2017, april 2016

The Decision to Fight

April 2014... we made the decision to fight! We weren't going to listen to doctors or social workers or even family members and friends that said maybe we should just let "nature take its course"...We were guided into the direction of termination because IF our son even survives this pregnancy, he will be born with many… Continue reading The Decision to Fight